The Rare Disease Database

The most comprehensive source of rare disease information.

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Olfactory Neuroblastoma

Learn About This Rare Disorder

What's Your Rare iQ?

This famous fashion designer passed away from HIV-related Kaposi's sarcoma in 1990.

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5 Facts you should know about

Carcinoid tumor

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Tuberous sclerosis complex

60% of tuberous sclerosis cases are diagnosed in the first year. Diagnosis slows down considerably after the first year.

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Top 10 rare oncology diseases

Measured by: incidence

Disease Est US IncidenceAge of onsetPrevalence
Transitional cell bladder carcinoma83,730723,745
Renal cell carcinoma76,080582,727
Pancreatic carcinoma60,43083,777
Ovarian cancer21,410
Diffuse B cell lymphoma/a>18,480
Soft tissue sacrcoma13,460157,855
Chronic lymphocytic leukemia12,870
Neuroendocrine tumors12,000175,000
Follilucular lymphoma8,910
Gastrointestinal stromal tumor4,785 42,750